Friday, March 30, 2012

Presidential Bioethics Panel Seeks Input on Sequencing-related Issues

At the February meeting, the [Presidential Bioethics] commission decided that the central questions it wants to address are those related to how to best balance the interests of individuals and society as they relate to data privacy and access.
(GenomeWeb Daily News)
Now is the time for all good citizens to come to the aid of their genomes! Here is your chance to share you opinion BEFORE public policy has totally solidified. Access to the vast array of information within your genome is at stake.
Should you control it?
Should the government control it? 
Should the medical and research community control it? 
Should private enterprise control it?
Presidential Bioethics Panel Seeks Input on Sequencing-related Issues | GenomeWeb Daily News | Sequencing | GenomeWeb

Let your thoughts be heard at this critical juncture. Public comments are due by May 25.

Contact the Commission:
     1425 New York Avenue, NW
     Suite C-100
     Washington, DC 20005
     (202) 233-3960, phone
     (202) 233-3990, fax

About the Commission
The Presidential Commission for the Study of Bioethical Issues (the Commission) is an advisory panel of the nation’s leaders in medicine, science, ethics, religion, law, and engineering. The Commission advises the President on bioethical issues arising from advances in biomedicine and related areas of science and technology. The Commission seeks to identify and promote policies and practices that ensure scientific research, health care delivery, and technological innovation are conducted in a socially and ethically responsible manner.

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