Thursday, April 26, 2012

Privacy and Access to Human Genome Sequence Data

On March 27, 2012 Health and Human Services Department posted a request in the Federal Register:

The Presidential Commission for the Study of Bioethical Issues is requesting public comment on the ethical issues raised by the ready availability of large-scale human genome sequence data, with regard to privacy and data access and the balancing of individual and societal interests.

This article has a comment period that ends in 29 days (05/25/2012)

I strongly believe that individuals should have access to the information contained within their bodies and have submitted to the Commission my belief that this may become one of the most important civil rights issues of the 21st century. An early draft of my thoughts was published in the blog in November.

Let the Commission know what you think as well. 

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